The more you know, the better prepared you’ll be for whatever IgA nephropathy brings for your loved one. Encourage them to learn with you – knowledge is power for you both. 

People with IgA nephropathy need a special diet, which may feel overwhelming to them at first. Be an extra set of hands in the kitchen or eyes at a restaurant to ensure they’re getting the nutrients they need and avoiding too much of those they don’t. 

It’s common for someone with IgA nephropathy to feel low energy levels, which may make exercising seem out of reach. With gentle encouragement – maybe with planned walks or doing regular yoga videos together – you can help keep physical activity part of their daily wellness routine. 

Among the most basic roles of a caregiver is to help keep track of medication doses and instructions. Work with your loved one to talk through each treatment they take and when they should take it. You can also suggest tools like phone reminders or pill counters. 

Connection and support are important for both your loved one and for you. Resources such as the National Kidney Foundation and National Family Caregivers Association are two of many organizations that offer community for people living with kidney disease and those who care for them. 

Many emotions come with living with a chronic disease. A key part of caregiving is providing emotional support for your loved one as they process their disease and how it affects their life. Take your cue from them – some days they may want to talk about their health, and other days they may want to talk about anything but that.

Caretaking is a serious job, but it doesn’t always have to involve serious activities. Watch a movie together, enjoy a cup of tea, have a meal, or invite a friend over for a visit. Keep joy part of your days as you care for your loved one. 

Offer to drive to medical visits, and take notes as another set of ears in the visit. Having a scribe can help your loved one be present in the appointment while you record the important points to remember. 

Have your own support you can vent or express concerns to. This may be a close friend or family member, or a professional counselor. 

Like flight attendants say on airlines, be sure to put on your own oxygen mask before assisting others. Prioritize your wellness with a nutritious diet, stress relief, regular exercise, and quality sleep. As a caregiver, it’s important to first care for yourself.