
Lupus affects every part of you, including your skin, joints, kidneys, heart, and lungs. Managing this autoimmune condition takes a whole-body approach.
While medicine is an important part of your treatment, so are nutrition, exercise, stress relief, and a solid support system.
The more attention you pay to your health and well-being, the better you'll feel. A few self-care strategies can help you have fewer lupus flares. These tips may help you deal better with the symptoms you do have, too.
Learn Your Triggers
Lupus symptoms show up during episodes called flares. Certain things around you can set off these symptom flares, including:
- Ultraviolet (UV) rays from the sun
- Colds and other infections
- Injuries
- Stress
- Surgery
- Pregnancy
Medicines that make you more sensitive to the sun can also trigger your symptoms. For example, certain antibiotics, blood pressure medicines, or immune-suppressing drugs may bring on flares.
Keep a log of your symptoms. Note when they get worse and what you were doing at the time. Eventually, you'll start to see patterns. Once you identify your flare triggers you can try to avoid them.
Because UV light is a big lupus trigger, wear protection whenever you're out in the sun. Apply sunscreen with a sun protection factor (SPF) of at least 55 SPF. Cover your skin with UV-protecting clothes, including long pants, a long-sleeved shirt, and a wide-brimmed hat.
Stay on Top of Your Health
Medicines like hydroxychloroquine (Plaquenil), corticosteroids, and biologics suppress your immune system to prevent damage and control symptoms. Getting on a treatment early and taking every dose can help you stay healthy and prevent lupus complications. Make sure you have a doctor you trust to manage your treatment.
Whenever your doctor prescribes a new medicine, learn as much as you can about it. Ask your doctor or pharmacist how the drug works and what side effects it might cause. The more you know about your medicines, the more confident you'll be that you're on the best treatment plan for you.
Don't wait for your symptoms to get worse. See your doctor for regular checkups. People with lupus who make regular visits to their rheumatologist have better outcomes than those who don't.
If you have side effects or other problems with a medicine, don't just stop taking the drug. Going off a medicine could lead to more disease flares. Ask your doctor if they can adjust the dose or put you on a different medicine.
Focus on Nutrition
Lupus doesn't require a restrictive diet. In fact, eating a variety of nutritious foods is the best approach.
Fill up on fresh fruits and vegetables, whole grains, healthy proteins like chicken breast and fish, and unsaturated fats such as olive oil and nuts.
Alfalfa is one food your doctor may suggest you avoid. An amino acid called L-canavanine in alfalfa sprouts can increase inflammation and trigger more symptoms.
Having lupus increases your risk for heart disease and osteoporosis. Fatty fish, nuts, and seeds contain omega-3 fatty acids that protect your heart.
Calcium from dairy foods like milk and yogurt, leafy greens such as spinach and kale, and fortified cereals protect your bones. Ask your doctor if you should add a vitamin D supplement. People with lupus are more likely to be low in this important nutrient.
Stay Active
Regular exercise will lower your risk for heart disease, keep your bones and muscles strong, protect your joints, and give you more energy. The safest exercise programs for lupus include:
- Water aerobics
- Walking
- Swimming
- Elliptical training
- Yoga
- Tai chi
A mix of aerobic exercise, stretching, and strength training will give you the most benefit. Try to get 30 minutes of aerobic exercise, 5-7 days a week. You don't have to do all 30 minutes at once. Break it up into 10-minute segments if that's easier. Choose an exercise you enjoy so you'll be more likely to stick with it.
Before you start working out, ask your doctor if you should be extra careful because of a health condition like heart disease or osteoporosis. A physical therapist can tailor an exercise program to your health and abilities.
Avoid Tobacco
You have so many reasons not to smoke. Lupus is just one of them. Smoking could trigger more lupus flares. It might also lead to more severe disease and an increased risk for organ damage. And it can reduce the effectiveness of the medicines you take to manage lupus.
Smoking also increases your risk of getting heart disease, which is already higher than usual if you have lupus. Quitting smoking isn't easy. Your doctor can help you find the smoking cessation plan that's most likely to work for you.
Reduce Alcohol
Alcohol and lupus medicines aren't a good mix. Drugs like methotrexate and leflunomide (Arava) can damage your liver. Alcohol accelerates liver damage and can lead to scarring called cirrhosis.
Drinking alcohol makes medicines like the blood thinner warfarin (Coumadin) less effective. And mixing alcohol with prednisone or nonsteroidal anti-inflammatory drugs (NSAIDs) like ibuprofen can increase your risk for GI bleeding.
Cope With Stress
Life with a chronic disease is undoubtedly stressful. When you don't manage that stress well, it can lead to more flares. You have many options when it comes to managing stress. Choose the one that works best for you:
- Practice meditation, yoga, or deep breathing.
- Read a funny book.
- Watch a TV show or movie.
- Listen to music you love.
- Do something creative, like painting or writing in a journal.
Fight Fatigue
Fatigue is a part of life with lupus. Almost everyone with this disease feels exhausted from time to time. Up to 40% of people with lupus have constant fatigue that's severe enough to disrupt their life.
Sleeping well is important, but getting more sleep won't always prevent fatigue. These are some other ways to manage fatigue:
- Do aerobic exercises like walking or bike riding to boost energy
- Take rest breaks when you need them
- Eat more protein (chicken, fish, tofu, beans)
- Use cognitive behavioral therapy (CBT) to prevent negative thinking
- Ask for help when you need it
Get Support
A chronic illness like lupus can make you feel alone, but you're not. Help is out there when you need it. Get emotional support and help with daily tasks from family, friends, and co-workers.
Ask for advice from your health care team. See a therapist, psychologist, or counselor when your emotions feel overwhelming. And join a support group for people with lupus in your community or online. Other people with lupus have unique insights on what you're experiencing because they've been through it too.
The Lupus Foundation of America offers these support groups:
- National Asian Lupus Support
- National Hispanic Lupus Support
- Lupus 101 Support — for people diagnosed less than 2 years ago
- National Lupus Sister Circle — for Black women who live with lupus
You can also find support groups by checking with your rheumatologist or local hospital.
Be Gentle With Yourself
You can get so caught up in managing your disease that you forget to care for yourself. Set aside time to do what brings you joy. Read a good book. Go out for dinner or to a concert with friends. Volunteer at your local animal shelter. Practice yoga.
Once you get your disease under good control, you'll have more time to focus on other parts of your life.
Show Sources
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SOURCES:
Bulletin of the NYU Hospital for Joint Diseases: "Vitamin D in Lupus."
CDC: "Lupus Basics."
Cleveland Clinic: "Lupus (Systemic Lupus Erythematosus."
Frontiers in Medicine: "Predictors of stress in patients with lupus."
Hospital for Special Surgery: "Getting Exercise and Keeping Physically Fit While Living With Lupus," "Lupus and Fatigue."
Johns Hopkins Lupus Center: "5 Things to Avoid if You Have Lupus."
Journal of Clinical Medicine: "How can we enhance adherence to medications in patients with systemic lupus erythematosus? results from a qualitative study."
Lupus Foundation of America: "7 Ways to Build the Support System You Need to Cope With Lupus," "Common Triggers for Lupus," "Dos and Don’ts for Living Well With Lupus," "Eating Healthy When You Have Lupus," "Find Support Near You," "Managing Stress When You Have Lupus," "Thinking About Drinking? Read This First."
Lupus Science & Medicine: "Smoking associates with increased BAFF and decreased interferon-Y levels in patients with systemic lupus erythematosus."
Mayo Clinic: "Lupus."