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Caring for Yourself With PNH

Article
The Challenges of Paroxysmal Nocturnal Hemoglobinuria (PNH)

Paroxysmal nocturnal hemoglobinuria (PNH) brings challenges that impact work and relationships, like fatigue. Here’s what to know and how to manage.

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Video
When Words Don’t Illustrate the Pain

Bug Voss couldn’t explain her fatigue and pain, so she turned to art as an outlet. Then, she was finally diagnosed with PNH, a rare blood disorder.

Article
What Life With PNH Looks Like

Learn what to expect when you have PNH, including symptoms, treatment and its side effects, lifestyle considerations, and more.

Video
Best Foods to Ease PNH

Stock your pantry with this list of foods that promote healthy blood cells.

Slideshow
Tips for Caring for Yourself

Learn the lifestyle tips you can follow to care for your physical and mental health when you have paroxysmal nocturnal hemoglobinuria (PNH).

Video
Complications to Be Aware Of

With medication, most people can control the difficult symptoms of this bone marrow disorder.

Article
Be Proactive About Your Care

If you have PNH, it’s important to take charge of your health to ensure better outcomes and a better quality of life. Here’s how.

Article
Staying Motivated If Treatment Gets Hard

Receiving treatment for paroxysmal nocturnal hemoglobinuria can be hard. When you’re struggling to stay motivated, these strategies can help.

Article
The Future of Treatment

PNH treatments are better than ever before, and there’s hope they’ll continue to improve. Find out what’s in the works and how you can help.

Article
The Treatment Landscape

Treatments for paroxysmal nocturnal hemoglobinuria (PNH) have evolved, offering hope for people who live with the blood disorder.

Article
Finding Support and Community

If you have PNH, it is very important that you connect with others who experience the same rare disease. Here’s how to find them.

Article
What Black and Hispanic Patients Should Know

If you’re Black or Hispanic and have paroxysmal nocturnal hemoglobinuria, you might be at a higher risk for a serious complication.

Article
How to Care For Your Loved One With PNH

If a loved one has been recently diagnosed with PNH, you may feel uncertain and wonder what’s the best way to support them. Here are some tips.

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