It’s normal to value your independence, so it can be frustrating to face the fact that conditions, like multiple sclerosis (MS), can lead to such life-altering symptoms that you need a caregiver. There are a lot of advantages, though, to forming a close, personal relationship with a caregiver. This person can make all parts of your disease easier to manage.
Caregivers are most often a family member or close friend. Due to the progressive nature of MS and the variability in its symptoms, it’s best to establish your caregiver early on in your diagnosis. This way, you can both learn and grow together as you adjust to life with MS.
Caregivers are great for providing physical support. Sometimes, you’ll just need a hand to help you stand up or a shoulder to lean on while walking down the street. When you’ve spent enough time with your caregiver, they’ll be as familiar with your energy levels as you are and can help you move at the right pace.
Even more important is the mental and emotional support that caregivers can provide. Being able to talk with someone close to you about what you’re feeling is one of the better ways to manage the more difficult symptoms of MS, such as anxiety and depression. Many caregivers have found that the experience is satisfying and emotionally fulfilling for your caregiver, too.
A close caregiver can know your mind and wishes as well as you do. They can act as a liaison when symptoms are too overwhelming for you to deal with other people. They can also serve as your legal representative and make sure that your needs are met as you approach the end of your life.
Overall, one of the best parts of having a caregiver is the mutual validation that you can provide to one another. It’s okay for both of you to feel overwhelmed, stressed, or frustrated at times. When you spend enough time together, you know exactly what the other person has to deal with. You can assure each other that your feelings are valid and that you support one another no matter what.
Your caregiver can be your best advocate and your best friend. They’re the most important part of your care team.
